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sue (sue123)


June 27, 2007


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Michigan


5-1-52


Colon and Rectal Cancer


colon cancer


6-03


Stage 4


Yes


Lymph Node Removal, Re-excision Surgery


Fluorouracil


How it hurts soooo many people!


I live to the fullest everyday.


Pray for everyone's pain and suffering.


animic—I also have lupus and this was found on a routine blood test. I had no other symtoms. Had I got a colonoscopy one year earlier at age 50, I probably would not have got cancer. Please have a colonoscopy at least by age 50! Earlier if there is a family history or if you have symtoms.


6-03 stage 3 colon cancer. Removed right colon, gallbladder, ovaries and lymph nodes (one positve)
12-06 stage 4 colon/liver cancer. Had 1/3 liver removed and swollen nodes near by (positive). Detected by CEA blood test-the pet scan. Did 28 days of radiation, then onto oral chemo therapy. I take Xeloda 21 days a month. I have been on this now for 8 months.
Febuary 08- spread to lungs—now on chemo therapy IV’s (folfox6, Avastin 5FU-levo and Oxi) 6 hours one day-4 hours next day and wear fanny pack filled with chemo for 48 hours at the same time as treatments. I do this every other week.


28 days after second surgery. Felt ok until the last week in which I was very tired.


6-03—36 weeks of IV chemo therapy. Had problems with severe diarrah, nausa and fatigue 3 days out of 7. Slightly ill the rest of the days with same symtoms, but milder.
2007—doing much better on chemo therapy by adding alternitves. (read below)
12-07- oral Xeloda (chemo therapy). Take for 2 weeks straight 2 times a day, then one week off. Side effects are slight now that I take fermented wheat germ, green wheatgrass and mangoseed juice. The juice improved my energy level a lot! I think we are seeing some results from the fermented wheatgerm as we are now starting to see on my cat scans that things have kind of stopped. In the England Cancer Journal they have proved that fermented wheat germ can slow and sometime cure cancers. The mangoseed juice is made in Asia, this is the only place it grows. It is extremely high levels of antioxidants! Knock on wood I haven’t been sick since I started it! I also only eat organic (as much as I can) I eat lot’s of greens and fruits. I get protein from the grains and I also eat a lot of nuts. I have felt so much better since doing this it is unbelievable.. I have hand and foot syndrome that this chemo can cause..this can/is be very painful.
Febuary 08-New treatments of folfox6, Avastin and 5FU—extreme fatigue-nausa-diarreha-controled by medications for the most part. Need to rest a lot.




sue123's Cancer Blog

February 28, 2008

side effects?Views: 1330

Well here I am back finally. It has been a rough few days. We discoverd the C is back in my lungs now. Sooooo, the new plan is: 5FU & Lev, FOLFOX, & Avastin. I will have the chemo drip on day one and day two, and wear a pump for 2 days. Anyone that has been through this, can you tell me how you did?

It is still cold and snowy here. We are all wondering when this winter will change over to spring! One thing for sure, we will appreciate spring when it gets here after this long winter!

We have had dinner a few times at our son and his bride’s home. It has been so nice to see how well they get along and how happy they are. I wish them happiness forever!

I am off to the surgeon’s today. Having a port put back in tomorrow (I think). Then chemo regime will start next week. I am a bit nervous…but I will do the best I can.

I hope all of you are doing well.

Sue

Sue,
The news we dread, pray we will not hear, but are never surprised by… I am sorry it is back. Your treatment appears to be first rate. Go get it girl! Knock that “C” into the next universe! Spring will reach you eventually and make such a difference. I am in California and it is 71 today after weeks of cold wind and rain. The trees have blossoms, the sun feels wonderful, and the world seems a better place. As always, our prayers are with you.

Hi Sue

That’s the good stuff, it sounds like they are being aggressive. That’s the exact regimen our Mom is on. She has a colostomy so the Avastin has caused her some problems. You have to be careful of bleeding with that; internal, stomach, etc. But her problems were associated with the colostomy so if you don’t have one hopefully it won’t be a problem. She also experiences neuropathy on the Folfox. She can’t drink anything cold and her extremities get tingly and cold easily. She has gotten used to it now but it is the worst the first couple days and it starts immediately after receiving the chemo.
But….her CEA levels continue to fall and the tumors are shrinking so the treatment works! I hope that is some consolation aside from the side effects!

No words to express our distress for you Sue – Girl. Everyone knows you as a fighter, you have so often shown us all that.May the Great Spirits guard and give you strength to continue this Fight.
Love, Juan & Al

Good luck with your new regime. Here’s a brave lady who is on the same one: Maggie at www.thumpers-hole.net

Sue – Sorry I haven’t been blogging in awhile. I am sorry to hear that you’re going back on chemo and am praying for you to knock those tumors out for good! I’ll be in Detroit towards the end of this month for spring break. Maybe I can stop by and see you one of those days? I hope you’re feeling well and eating healthy and staying strong. Take care and I’ll be in touch!
Kelly

Hi Kelly I would love to see you when you are in town!
Everyone else thanks so much for your prayers, information and being here for me.
I am here for all of you also! Check in again soon!
How about those politians?

Angels are watching over ya!

I am so very sorry but hang in there and keep up the fight. You sound like a very brave lady. I will be praying for you. Hugs, Joyce

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