Blog for a Cure - A community of cancer survivors supporting each other. Log in

avatar

Vitals


sue (sue123)


June 27, 2007


Click here.


Michigan


5-1-52


Colon and Rectal Cancer


colon cancer


6-03


Stage 4


Yes


Lymph Node Removal, Re-excision Surgery


Fluorouracil


How it hurts soooo many people!


I live to the fullest everyday.


Pray for everyone's pain and suffering.


animic—I also have lupus and this was found on a routine blood test. I had no other symtoms. Had I got a colonoscopy one year earlier at age 50, I probably would not have got cancer. Please have a colonoscopy at least by age 50! Earlier if there is a family history or if you have symtoms.


6-03 stage 3 colon cancer. Removed right colon, gallbladder, ovaries and lymph nodes (one positve)
12-06 stage 4 colon/liver cancer. Had 1/3 liver removed and swollen nodes near by (positive). Detected by CEA blood test-the pet scan. Did 28 days of radiation, then onto oral chemo therapy. I take Xeloda 21 days a month. I have been on this now for 8 months.
Febuary 08- spread to lungs—now on chemo therapy IV’s (folfox6, Avastin 5FU-levo and Oxi) 6 hours one day-4 hours next day and wear fanny pack filled with chemo for 48 hours at the same time as treatments. I do this every other week.


28 days after second surgery. Felt ok until the last week in which I was very tired.


6-03—36 weeks of IV chemo therapy. Had problems with severe diarrah, nausa and fatigue 3 days out of 7. Slightly ill the rest of the days with same symtoms, but milder.
2007—doing much better on chemo therapy by adding alternitves. (read below)
12-07- oral Xeloda (chemo therapy). Take for 2 weeks straight 2 times a day, then one week off. Side effects are slight now that I take fermented wheat germ, green wheatgrass and mangoseed juice. The juice improved my energy level a lot! I think we are seeing some results from the fermented wheatgerm as we are now starting to see on my cat scans that things have kind of stopped. In the England Cancer Journal they have proved that fermented wheat germ can slow and sometime cure cancers. The mangoseed juice is made in Asia, this is the only place it grows. It is extremely high levels of antioxidants! Knock on wood I haven’t been sick since I started it! I also only eat organic (as much as I can) I eat lot’s of greens and fruits. I get protein from the grains and I also eat a lot of nuts. I have felt so much better since doing this it is unbelievable.. I have hand and foot syndrome that this chemo can cause..this can/is be very painful.
Febuary 08-New treatments of folfox6, Avastin and 5FU—extreme fatigue-nausa-diarreha-controled by medications for the most part. Need to rest a lot.




sue123's Cancer Blog

January 16, 2008

needing helpViews: 2234

I wanted to talk about our friends that have good intentions in asking if we need them to help us. I have a many friends that always ask if they can do something for me. They really mean it and I am so apprecative, but most of the time even thought I am very fatigued I really do not need help with chores and all.

There is just my husband and I and he does whatever I cannot. And, I have a cleaning lady every 2 weeks that does the big things. Yes, of course after my surgeries I took all the help I could get, bacause I was not able to drive, pick up anything heavy etc. So anyone that offered to shop for me and do the things I couldnt at that time I excepted with many thanks.

I have about 1 1/2 – 2 hours a day that I feel pretty good so this is when I do what I need to get done. I take great pride in being able to still be able to do these things. After that I pretty much rest or do computer work.

My problem is that a couple of my friends actually get mad at me because I dont take them up on their offers of help. Also, they have asked me to go to lunch or out shopping. I do not mean to be rude and it isnt that I do not want to go out with them for a visit, but after I do what I need to do (I am a very independant person) I am too tired to go with them. I do not want to loose my friends becasue of this. Having cancer and being on treatment hampers us so much. Am I being a bad friend for what I am doing?

Also, sometimes I feel it is easier and makes sence to me to have my sister take me for Dr. apts. if needed and maybe we will stop for lunch on the way home and then when I tell these friends this they get mad or hurt. But, I am also very private with my health problems and I feel that them taking me would be such a downer….am I making any sence? Should my friends be mad at me for this? I am so confused…

Sue,
Just my two cents.
This comes up often on these boards and others. You know how when you do someone a favor or do something for someone how good you feel.
If you could think of just a little something someone could do for you, they feel like they are doing something. Keep a list of small things you need to get done that someone else could do.
Friends and family feel so powerless when someone they love is sick. They just want to do anything they can.
For example: if someone asks you to lunch and you don’t feel well enough, you could say I’m sorry I am not really up to lunch but if you want to do me a favor you could ….... Come over and do a load of laundry, run an errand etc…
They would probably feel like they are helping and that makes them feel good.
I am a very independent person too so I had a hard time with it. Even when I was at my worst after surgery.
My daughter kept asking. I finally asked her if she could come clean my house. I hadn’t been up to doing it for awhile and it was getting pretty dusty and dirty. She felt great she was helping me in some way and I felt better about having a clean house.
Hope this helps
Donna

Perhaps you could ask one over to lunch and have them bring a favorite sandwich or salad. That would take the pressure off you and allow you to catch up with each other over a nice gab.

Or perhaps you need some small thing from the drug store or grocery store, and could ask a friend to pick it up for you.

Try and let them help even if it is only a little. You don’t want to loose your friends due to the strain that cancer is putting on you.

Sue,

A very good friend gave me some great advice, let everyone help you whenever they can. I had a really difficult time letting people do things for me but when I finally relented it was wonderful. One of my favorite things was food. If people asked to do something, I told them a homemade casserole or dish that could be frozen and reheated was appreciated. I still have some in the freezer and I heat them up on off days.

Another great thing for friends to do is pick up dry cleaning, bring some groceries, run the vacuum, etc. I found that my friends and family wanted to be near without intruding. One of my cousins would periodically drop off homemade bread or pasta. It was wonderful.

Also, now that I am on the mend and done with my treatments, no one is offering to do anything. Take the help while you can.

Melissa

Thanks for the great advice girls! I see this in different light now…much appreciated! :-) Sue

Bookmark and Share


Sue123's Stats

Posts: 77
Photos: 2
Events: 0
My Supporters: 23
I Support: 22
Comments: 242
Views: 113935




Become a Supporter





Advertising



Blog for a Cure Info

Blog for a Cure spends about $200 a month to keep this site up and running.

If you wish to become an advertiser or want to read more about the company please see our advertising page.

All proceeds, if we ever have any, will go back into building a better system.

Thanks for your support - Jill, Founder, Cancer Survivor

p.s. If you have any suggestions on how to improve Blog for a Cure, please send me some feedback. The last thing I want to do is offend anyone with too many ads. Please keep in touch & let me know how I can make this the best system possible for you.