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sue (sue123)


June 27, 2007


Click here.


Michigan


5-1-52


Colon and Rectal Cancer


colon cancer


6-03


Stage 4


Yes


Lymph Node Removal, Re-excision Surgery


Fluorouracil


How it hurts soooo many people!


I live to the fullest everyday.


Pray for everyone's pain and suffering.


animic—I also have lupus and this was found on a routine blood test. I had no other symtoms. Had I got a colonoscopy one year earlier at age 50, I probably would not have got cancer. Please have a colonoscopy at least by age 50! Earlier if there is a family history or if you have symtoms.


6-03 stage 3 colon cancer. Removed right colon, gallbladder, ovaries and lymph nodes (one positve)
12-06 stage 4 colon/liver cancer. Had 1/3 liver removed and swollen nodes near by (positive). Detected by CEA blood test-the pet scan. Did 28 days of radiation, then onto oral chemo therapy. I take Xeloda 21 days a month. I have been on this now for 8 months.
Febuary 08- spread to lungs—now on chemo therapy IV’s (folfox6, Avastin 5FU-levo and Oxi) 6 hours one day-4 hours next day and wear fanny pack filled with chemo for 48 hours at the same time as treatments. I do this every other week.


28 days after second surgery. Felt ok until the last week in which I was very tired.


6-03—36 weeks of IV chemo therapy. Had problems with severe diarrah, nausa and fatigue 3 days out of 7. Slightly ill the rest of the days with same symtoms, but milder.
2007—doing much better on chemo therapy by adding alternitves. (read below)
12-07- oral Xeloda (chemo therapy). Take for 2 weeks straight 2 times a day, then one week off. Side effects are slight now that I take fermented wheat germ, green wheatgrass and mangoseed juice. The juice improved my energy level a lot! I think we are seeing some results from the fermented wheatgerm as we are now starting to see on my cat scans that things have kind of stopped. In the England Cancer Journal they have proved that fermented wheat germ can slow and sometime cure cancers. The mangoseed juice is made in Asia, this is the only place it grows. It is extremely high levels of antioxidants! Knock on wood I haven’t been sick since I started it! I also only eat organic (as much as I can) I eat lot’s of greens and fruits. I get protein from the grains and I also eat a lot of nuts. I have felt so much better since doing this it is unbelievable.. I have hand and foot syndrome that this chemo can cause..this can/is be very painful.
Febuary 08-New treatments of folfox6, Avastin and 5FU—extreme fatigue-nausa-diarreha-controled by medications for the most part. Need to rest a lot.




sue123's Cancer Blog

January 15, 2008

some daysViews: 2118

It has been some time since I have posted. I have been feeling very fatigued. I had one cycle of chemo off because my feet got so bad with foot syndrome. I was on the couch for 2 weeks! So needless to say it felt good to be off for 2 weeks. My feet did heal and I am now back on Xloda-my first week- and I can tell that my feet are going to start acting up again…and I have been so fatigued! URG!

Anyhow, last week I went to see another Dr. for a consutation, and what a day I had. First the girl at the office gave me the wrong directions (I should have googled it). When I finally figured out I was at least 8-10 miles out of my way I stopped and called the office. Another girl at the office said to me, “no you should have turned right not left”...bla bla bla. So, I turned around-was already 15 minutes late. I finally found the place and I again follow the girl at the office’s advice as to where to park—(it was at a pretty big hospital campus). Ok, so I go where she tells me to go and what is there you ask—- A construction crew tearing up the parking lot where I am instructed to park….soooo I find a different way in—I am in a hurry—I asked 3 people—(and miles later) how to get to his office before I finally get to it. I then finally see the Dr. Im not too impressed with his attitude. The nurse gives me all kinds of papers etc. (which I do not need—I am already there I know what they do etc.). I am so pooped out by this time, I am happy that it is time to go! So I start to leave and now I wonder ‘how in the heck I got here and where the heck did I park’, where did I finally come in etc?? I am a wreak, and I have to go potty. I see a bathroom, I go in and as I am finishing up I am thinking of where I am, how to get out of here, I have 5 lbs. of paperwork the nurse gave me and my keys are in my hand and I am trying to wash my hands…well ok I am all done and ready to go. So I walk a couple hundred miles until I finally see a door that looked familure so I go out to find my car…I walk, and walk and look and look…I finally find the construction crew so I am trying to back track where I went from there…20 minutes later I find my car! Oh the relief…I want to just GO HOME! I drive home, I am finally starting to relax, and I pull into our garage, turn off the car and give a sigh of relief and go to grab my purse and NO PURSE! OMG! I left my purse somewhere! I am in a panic! I go in the house and call the Dr. office and she informs me that yes, someone found my purse IN THE BATHROOM where I left it and that she figured out it was mine because of a pill bottle inside it with my name, but she didn’t find any wallet. I am in another panic! So I get back in my car and drive back to the place (30 mintutes) paying close attention to where I am going even though I am so scared that my wallet is in someone else hands! I get to the office, the nurse gives me my purse, I open my secret pocket and thank God everything is there! I am so relieved and so tired. I drive home; I go in the house and I ‘thank God’ that I am home (and with my purse). My husband comes in about 20 minutes later from work, I am still sitting in the chair—he looks at me and asked me how my day was…..

Absolutely Hilarious. I thought these things only happened to me.
I think I would have been tempted to pull into the garage, close the door and leave the motor running.
I wanted to ask you something, since you write so well. I have a book going to the publisher in about a month “Cancer, Chemo and Beyond”
I was wondering if I could include your story?
If you could write your story and funny things that happen like this or if you don’t feel like writing but would like to be included, I could copy what you have posted here. I could just use your first name if you want to be anonymous So, what do you think? My e-mail is donnarichno@yahoo.com
Donna

What a day. I thought I had some tough days at my medical center. Your days beats my worst day hands down.

I’m so glad that you got your purse and it’s contents back. Can’t imagine having to deal with a missing wallet now (or at any time in my life).

Hope this cycle of chemo goes well for you.

Keeping you in my prayers.

Carol

That sucks! I get kinda the same way when I go to doctors now. Ever since the bad news when I go to see doctors, something happens. I think I just stop thinking and start worrying about all the what ifs. End up driving to the wrong hospital, forgetting my doctors name, something silly, that annoys the crap out of me. and makes me even more frustrated. Glad you got your purse back. That person was so nice to return it.

Jill I said the same thing to the girl that found my purse! I took her a box of candy when I went to get it. I am surprised I even thought of that (candy) with the state I was in!

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Sue123's Stats

Posts: 77
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