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sue (sue123)


June 27, 2007


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Michigan


5-1-52


Colon and Rectal Cancer


colon cancer


6-03


Stage 4


Yes


Lymph Node Removal, Re-excision Surgery


Fluorouracil


How it hurts soooo many people!


I live to the fullest everyday.


Pray for everyone's pain and suffering.


animic—I also have lupus and this was found on a routine blood test. I had no other symtoms. Had I got a colonoscopy one year earlier at age 50, I probably would not have got cancer. Please have a colonoscopy at least by age 50! Earlier if there is a family history or if you have symtoms.


6-03 stage 3 colon cancer. Removed right colon, gallbladder, ovaries and lymph nodes (one positve)
12-06 stage 4 colon/liver cancer. Had 1/3 liver removed and swollen nodes near by (positive). Detected by CEA blood test-the pet scan. Did 28 days of radiation, then onto oral chemo therapy. I take Xeloda 21 days a month. I have been on this now for 8 months.
Febuary 08- spread to lungs—now on chemo therapy IV’s (folfox6, Avastin 5FU-levo and Oxi) 6 hours one day-4 hours next day and wear fanny pack filled with chemo for 48 hours at the same time as treatments. I do this every other week.


28 days after second surgery. Felt ok until the last week in which I was very tired.


6-03—36 weeks of IV chemo therapy. Had problems with severe diarrah, nausa and fatigue 3 days out of 7. Slightly ill the rest of the days with same symtoms, but milder.
2007—doing much better on chemo therapy by adding alternitves. (read below)
12-07- oral Xeloda (chemo therapy). Take for 2 weeks straight 2 times a day, then one week off. Side effects are slight now that I take fermented wheat germ, green wheatgrass and mangoseed juice. The juice improved my energy level a lot! I think we are seeing some results from the fermented wheatgerm as we are now starting to see on my cat scans that things have kind of stopped. In the England Cancer Journal they have proved that fermented wheat germ can slow and sometime cure cancers. The mangoseed juice is made in Asia, this is the only place it grows. It is extremely high levels of antioxidants! Knock on wood I haven’t been sick since I started it! I also only eat organic (as much as I can) I eat lot’s of greens and fruits. I get protein from the grains and I also eat a lot of nuts. I have felt so much better since doing this it is unbelievable.. I have hand and foot syndrome that this chemo can cause..this can/is be very painful.
Febuary 08-New treatments of folfox6, Avastin and 5FU—extreme fatigue-nausa-diarreha-controled by medications for the most part. Need to rest a lot.




sue123's Cancer Blog

July 7, 2007

What to believe...what to do...?Views: 1785

I have been reading up on the product ‘Avemar’. All the information I have found has a lot of encouraging news on helping to fight cancers and more.

I have never been into alternative’s before, but after all my days (lately) of researching this product I am wondering if I should have been.

I have finally decided to give it a try.

Here is some information on Avemar, if interested.

http://www.avemar.com.au/avemar_research.ews

This Avemar sounds interesting. I will do some research on it. To answer your question on my blog. Doing the clinical trial doesn’t mean that I will never do chemo again. Right now I don’t choose to anymore. I have had a total of 16 months of chemo (4mo,6mo,6mo)and 3 surgeries in the past 2 years. I didn’t want to do anymore.

I really suffered through chemo. It was not a life worth living. I had a lot of problems. With The Erbitux I had a bad reaction and they couldn’t give me that anymore, I couldn’t function on Xeloda and got off it, a tumor grew while I was taking Avastin. It worked great the first chemo protocol it quit working on the 2nd. I was cancer free for a short time after surgeries but it never lasted and I was just tired of being sick and tired and decided not to do anymore.
I found out about this vaccine trial. The word vaccine is a little misleading in that it is not just 1 shot and you are done. It is a series of 4 shots given over 4 days for 3 months. Scans are taken every 3 months for 2 years. If this trial is approved, once people have surgery to remove colon cancer tumors on the colon and liver they will be able to get these injections instead of chemo.
If at some point I decide to have more surgeries or chemo I will have to drop out of the trial. I don’t intend on having either but I have learned to never say never.
I thought you had to have a clean scan to be approved for the trial but that was not the case because I still have tumors in my lung and my liver. The trial vaccine works by boosting the patients own immune system and targeting and killing cells with CEA attached. My doctor tells me all cancer cells have cea attached to them.
For more info on this trial you can go to:
http://www.cancer.gov/search/ViewClinicalTrials.aspx?cdrid=410791&version=patient&protocolsearchid=3422267
Talk to you soon. Stay Stong.
Donna

Hi Donna—I surely know what your talking about. Been there-done that. That’s why I am trying the Avemar (it makes your immune system strong also!). I tried to find a clinical trial in Michigan for the vaccine, but couldnt find one. I’d like to try that as well!
Keep strong—good luck!
Sue

Hope all goes will for you.

Love Sherri

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