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sue (sue123)


June 27, 2007


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Michigan


5-1-52


Colon and Rectal Cancer


colon cancer


6-03


Stage 4


Yes


Lymph Node Removal, Re-excision Surgery


Fluorouracil


How it hurts soooo many people!


I live to the fullest everyday.


Pray for everyone's pain and suffering.


animic—I also have lupus and this was found on a routine blood test. I had no other symtoms. Had I got a colonoscopy one year earlier at age 50, I probably would not have got cancer. Please have a colonoscopy at least by age 50! Earlier if there is a family history or if you have symtoms.


6-03 stage 3 colon cancer. Removed right colon, gallbladder, ovaries and lymph nodes (one positve)
12-06 stage 4 colon/liver cancer. Had 1/3 liver removed and swollen nodes near by (positive). Detected by CEA blood test-the pet scan. Did 28 days of radiation, then onto oral chemo therapy. I take Xeloda 21 days a month. I have been on this now for 8 months.
Febuary 08- spread to lungs—now on chemo therapy IV’s (folfox6, Avastin 5FU-levo and Oxi) 6 hours one day-4 hours next day and wear fanny pack filled with chemo for 48 hours at the same time as treatments. I do this every other week.


28 days after second surgery. Felt ok until the last week in which I was very tired.


6-03—36 weeks of IV chemo therapy. Had problems with severe diarrah, nausa and fatigue 3 days out of 7. Slightly ill the rest of the days with same symtoms, but milder.
2007—doing much better on chemo therapy by adding alternitves. (read below)
12-07- oral Xeloda (chemo therapy). Take for 2 weeks straight 2 times a day, then one week off. Side effects are slight now that I take fermented wheat germ, green wheatgrass and mangoseed juice. The juice improved my energy level a lot! I think we are seeing some results from the fermented wheatgerm as we are now starting to see on my cat scans that things have kind of stopped. In the England Cancer Journal they have proved that fermented wheat germ can slow and sometime cure cancers. The mangoseed juice is made in Asia, this is the only place it grows. It is extremely high levels of antioxidants! Knock on wood I haven’t been sick since I started it! I also only eat organic (as much as I can) I eat lot’s of greens and fruits. I get protein from the grains and I also eat a lot of nuts. I have felt so much better since doing this it is unbelievable.. I have hand and foot syndrome that this chemo can cause..this can/is be very painful.
Febuary 08-New treatments of folfox6, Avastin and 5FU—extreme fatigue-nausa-diarreha-controled by medications for the most part. Need to rest a lot.




sue123's Cancer Blog

July 1, 2007

dirty looksViews: 1565

Sometimes it is nice when you have a ‘blind’ illness—and sometimes it isn’t. I have had lupus for 18 years. No-one can really tell by looking at me how bad I really can feel. Sometimes when I am ‘extremely’ fatigued and or in a lot of pain I will park in a handicapped parking spot (not often)—and yes I get the ‘looks’, nasty looks. Now this IS one time I wish instead of the dirty look that they would just come out and ask me IF I am sick and why I am parking there. I feel like wearing a sign (on these days) that says “yes” today I have a ‘right’ to park here. And, you are lucky that you don’t.

I have/need to shop and do other errands to keep my life as normal as I can, but I do need a little help sometimes trying to get as much done as I can without using up the little bit of energy that I have. I have to do ‘something’ everyday otherwise I feel like my day is incomplete. Therefore fatigued, in pain, sick or just feeling downright awful I still try and have normality in my life. It might just be one trip to the grocery store to pick up a few needed items, or it might be a visit to a friend’s for a short time, but I have to do this. I have to have somewhat of a normal life living with these obstacles.

Gal!Just give them a dirty look back , then Smile.

Love Sherri

I need to try your advice Sherri! I like it.

Tell me about it!
I love when I walk out of the handicap bathroom stall. Imagine seeing me, a 27 yr old who doesn’t look a day over 17 yrs, at best, looking healthy and normal as a horse. (er. i guess that wouldn’t really be to normal if i looked like a horse) but…you know…
The thing i can’t WAIT to do, is for someone to dare bitch at me for occupying that bathroom. I can’t wait to cock my head to the side, say “really?” and lift my shirt just enough to flash my 10 inch scar and bandaged up stoma. and then decide whether to finish it up with “when you have to stick a tube in your stomach to take a crap, a little space and privacy helps.”

rock on missy!

Great comment. I hope when or if I need to do the same, that I can come up with some thing to make them feel bad and make me smile.

Power to us all!

Hug Sharon

I was thinking of the handicapped stall and wanted to say that I have got dirty looks for using one too! I have only used them when there was no one around that needed it. I was once in a restroom and there were 2 ladies waiting ‘in line’ to use a stall. The handicapped one was empty and there was no one waiting to use it! HELLO! So I procedded to use it and did. OMG! The looks I got when I came out! I washed my hands and left. What is wrong with people??

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