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sue (sue123)


June 27, 2007


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Michigan


5-1-52


Colon and Rectal Cancer


colon cancer


6-03


Stage 4


Yes


Lymph Node Removal, Re-excision Surgery


Fluorouracil


How it hurts soooo many people!


I live to the fullest everyday.


Pray for everyone's pain and suffering.


animic—I also have lupus and this was found on a routine blood test. I had no other symtoms. Had I got a colonoscopy one year earlier at age 50, I probably would not have got cancer. Please have a colonoscopy at least by age 50! Earlier if there is a family history or if you have symtoms.


6-03 stage 3 colon cancer. Removed right colon, gallbladder, ovaries and lymph nodes (one positve)
12-06 stage 4 colon/liver cancer. Had 1/3 liver removed and swollen nodes near by (positive). Detected by CEA blood test-the pet scan. Did 28 days of radiation, then onto oral chemo therapy. I take Xeloda 21 days a month. I have been on this now for 8 months.
Febuary 08- spread to lungs—now on chemo therapy IV’s (folfox6, Avastin 5FU-levo and Oxi) 6 hours one day-4 hours next day and wear fanny pack filled with chemo for 48 hours at the same time as treatments. I do this every other week.


28 days after second surgery. Felt ok until the last week in which I was very tired.


6-03—36 weeks of IV chemo therapy. Had problems with severe diarrah, nausa and fatigue 3 days out of 7. Slightly ill the rest of the days with same symtoms, but milder.
2007—doing much better on chemo therapy by adding alternitves. (read below)
12-07- oral Xeloda (chemo therapy). Take for 2 weeks straight 2 times a day, then one week off. Side effects are slight now that I take fermented wheat germ, green wheatgrass and mangoseed juice. The juice improved my energy level a lot! I think we are seeing some results from the fermented wheatgerm as we are now starting to see on my cat scans that things have kind of stopped. In the England Cancer Journal they have proved that fermented wheat germ can slow and sometime cure cancers. The mangoseed juice is made in Asia, this is the only place it grows. It is extremely high levels of antioxidants! Knock on wood I haven’t been sick since I started it! I also only eat organic (as much as I can) I eat lot’s of greens and fruits. I get protein from the grains and I also eat a lot of nuts. I have felt so much better since doing this it is unbelievable.. I have hand and foot syndrome that this chemo can cause..this can/is be very painful.
Febuary 08-New treatments of folfox6, Avastin and 5FU—extreme fatigue-nausa-diarreha-controled by medications for the most part. Need to rest a lot.




sue123's Cancer Blog

June 30, 2007

being brave....Views: 1516

When you find yourself in an ‘uncomfortable’ situation, it doesn’t mean you’re necessarily ‘brave’. You are probably scared to death. People/friends always seem to ‘remind’ you what an ‘inspiration’ you are and how much ‘courage’ you have. But, really your screaming inside, you hate being sick, you hate being there having to fight this endless battle. It bothers you that your friends think your an inspiration and have extra courage because we are sick. You try and hide, but there is no place to hide. You do not want to explain your situation to everyone day after day over and over.. You don’t want pity, but you do want compassion…real compassion and kindness that we give everyone healthy or sick…nothing extra because…we just want to be (treated)as we were before all this crap started.

People mean well, they just do not know what else to say. Sometime I wish they would just say how sorry they are (once) that we are sick and fighting for our lives everyday, and give us a big hug. Many people do this, but many more just compliment on how brave and inspiring we are over and over. I don’t feel brave and inspiring though…inside I am scared to death, outside I am not asking for others to actually know this… and I pray they never need to go through this.

Yes, we want them to be there for us. (But) we want to be the old friend before we got ill. We want to be treated as we are not ill, we want our old lives back…we do not want our friends to be sittings there on pins and needles afraid to say certain things…like what will be happing years from now with grandchildren etc…..(BUT) I want to talk about these things wheater I will be here to experience them or not. I want to be involved in the future too..I plan on being here!

Last night my husband Bill and I had a very nice, fun anniversary dinner out. We had friends join us and we had so much fun and good food. Afterwards we joined our neighbors for a BBQ Birthday party across the street from us. We had a lot of fun talking, catching up with everyone, and ate more! Gosh, it feels so good to have an appetite when I am off chemo. I have a few more days, so I will take full advantage. Today we are going to a car cruise/show. Bill has an old car (1963 corvette, split window—his baby that he has restored over the last 12 years) we like to take long rides out in the country and go to car shows.

It is another beautiful day so I an elated!

Feel well..

Sue! I think your post was will put. Some times you wish that people would treat you as if you were as healthy as the rest of them. I’m sorry is the words used , when we don’t know what else to say.

So when they say I am sorry, say so am I, Let’s Change the subject to something that will make me Smile.

With love Sherri

Good advice Sherri! Thanks I will use it. Sure beats all the explaing. :-)

MY DEAR FRIEND SENT ME THIS:

Hi Sue,

I read your blog post about not wanting to be considered brave or an inspiration.

I think you are wrong, and whether or not it is my place to express this, here I go.

You say you are not brave. You are not any kind of inspiration. But have you got any idea of how many people with your diagnosis just go to bed, curl up in a ball, pull the covers over their head, and wait to die? What? That’s what you feel like doing? Hmmm, and yet you plan showers and go to BBQ’s with friends and shop at Target during off-chemo times. And what do you suppose makes you different from those wimps who curl up and wait to die? Could it be…..oh, I don’t know…..courage??????

Humility is a wonderful thing. “Oh, pish tosh, I’m no different, I’m not special, I’m cowering in the corner” is a good way to relate to others who might actually be cowering in the corner and need company. But…... they aren’t out enjoying an evening with neighbors, taking a little time off from the scary future they may be facing. No, they are in the corner, or in bed with the covers pulled over their heads. Are you ABSOLUTELY CERTAIN you want to align yourself with them? Are you ABSOLUTELY CERTAIN that if someone refers to you as brave and inspiring you want to push them away, instead of saying “Well, hell yes, I am brave! It’s tough but it’s my life and I will not give it up without a fight! I have a future, I have things to live for, I AM NOT DONE HERE YET!”

Oh, sorry, those are things that brave and inspiring people say.

So….what are you saying?
..........

OK, I GUESS I AM BRAVE—THANK YOU MY FRIEND.

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Sue123's Stats

Posts: 77
Photos: 2
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My Supporters: 23
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